Listen for Clara Lemarr on the Radio station Mix 98.1 or Q94, November 30th between the hours of 1-2:30 PM! Talking about Ehlers Danlos Awareness!!

Congrats Clara Lemarr!! And thank you for all the support as she had more than 700 endorsements that she received for her WEGO Health Advocacy awards! She has been chosen as a finalist for both the "Rookie of the Year" and the "Best in Facebook" awards! You can see all the award winners on the attached link. Final winners will be announced in December! Congrats to all the nominees! 


Clara has been nominated for two different awards and we need your help! She has been nominated for "Rookie of the Year" & for the "Best in Show-Facebook" for her patient and health advocacy work through WEGO Health. If you can please help her get the endorsements she needs, it would be a great honor for her to potentially win one of these prestigious awards. 


Please go to this link and click on endorse


Thank you for your support!!!

The above video is an example of what my life used to be before EDS/POTS/MCAS took me away from all my dreams. I used to ride 5 days a week and spend my weekends showing my horses. This is the first time I have shown a horse in about 6 months... Ted was great and did his job very well, and I am grateful that my 4H club is here and I have an Extension agent that is awesome and they all care. 

UNITE@NITE, June 18th 5:00 PM

We are thrilled and so excited to be supporting the unite@night walk with the CSF Org! Clara has been preparing her speech. This is a great cause with a great group of people making a difference in the world. We hope that everyone can come on out and have a great time! Clara is looking forward to being able to meet everyone, do photos, and share in this wonderful experience! Please support CSF, you can make a donation for the walk, just check out the event page. Clara is registered too, so you can even join her team if you would like (link is below)! Would LOVE to see everybody there!

All donations are tax deductible and 100% of the proceeds go to help others

To spread awareness Ehler's Danlos Syndrome Type 3 (Hypermobility) and Postural Orthostatic Tachycardia Syndrome to educate and fight for a cure for the "Zebra" disease