The Junior Advisory Board was established to help children dealing with the diagnosis of Ehler's Danlos Syndrome and associated disorders to give them a voice and help Clara determine the strategy and vision of the Clara Lemarr Foundation. She wants to ensure that she stays in touch with the people affected by these disorders to ensure that she can continue to educate those around us to help provide the proper support. Clara's goal is to give the Invisible disease a voice that can be heard, even when the disease can not be seen.
Consists of anyone under the age of 18 to work with Clara on giving the kids a voice!
Please contact us at ClaraLemarrFoundation@gmail.com and in the subject line please put "Parent Advisory Board" or you can also message us on the Foundation Facebook page