Address for Camp-Check in we are expecting to start Friday, July 7th at 11 AM
All, camp will be July 7-9th, 2017. We will start checking people in at 12PM July 7th and we must be out of the campground by 11AM on July 9th. It will be held in Doswell, VIRGINIA. If you have questions, please contact us at CLARALEMARRFOUNDATION@GMAIL.COM you can also email us your camp registration forms.
You will need to bring Sleeping bags, pillows, all medications, any special food required (TPN, etc). We do have a hotel size fridge in each cabin. Please bring swim suits, sun screen. If you use any mobility devices please plan to bring them if possible. We will have a golf cart on hand to move campers around. Please bring any item at home that makes kids comfortable. Cell phones and electronic devices are allowed and there is WIFI, so please remember charging cords. Agenda for the camp will be sent out sometime this weekend after the Counselors meet with the Board. And finally, please bring your smiles!
There is NO COST to attend camp for children with EDS. If there is a medical necessity for a parent to attend, there must be a written doctor's note that states the parent must attend with the child, AND there will be an additional fee in the donation request amount to cover the parent's lodging. We do have limited room for cabins, so we really need to only allow parent's to attend in special circumstances. You can book at your own expense your own cabin, or a group of parents can get together and book a cabin for the parents to stay in, but the Foundation will not be handling those reservations this year.
We are asking everyone to take and ask local businesses in their respective areas or non-EDS families to donate to help fund the camp. Any donations are tax deductible. They can go to our square online store and make their donations. Our online store can be found on our website along with the registration forms and sponsor forms. Please help if you can.
We are trying to accommodate all children, so please help us by sending in your registrations ASAP so that we can ensure we have enough cabins and food for everyone. REGISTRATION DEADLINE WITH DONATION PAYMENT IS MAY 1ST.
WE HAVE OPENED CAMP TO ANY CHILD THAT HAS BEEN DIAGNOSED WITH THE FOLLOWING HEALTH ISSUES: Chiari Malformation, Ehlers Danlos syndrome, POTs, or Mast Cell Activation Syndrome. Clara wants to make sure that any child that has any of these health issues feels like they are included as we know that it can be devastating for a child to be left out. Please spread the word!
Whose ready for an AWESOME time at ZEBRA CAMP 2017?
Clara is super excited to be offering the camp for children ages 4-18
We are asking each camper to work on getting donations. You can send the link out for the Square store, and your donors can put your child's name on the form, that will be counted towards the donation to pay for camp. Each camper is expected to help get donations, which can be from anyone including businesses. The money is non-refundable, and it is not given to the camper, it is used to pay for the camp expenses, lodging, food, give-aways, etc for camp. The funds, due to IRS regulations on donations, are not refunded to the families.
There will be swimming, indoor bathrooms, all cabins have air conditioning!
We have Chef Heather from Texas coming up to help our campers do a great cooking competitions!
We have a Nurse who has both Trauma and EDS experience to help watch over the kids.
We have counselors lining up from all backgrounds! It is going to be a GREAT camping experience that is safe and fun for EDS kids! We hope to fill all 20 spots!
Do you know someone who wants to support the camp experience?
They can do a Zebra Camp Donation Sponsorship-Send a Zebra to Camp for $250-that will cover the full expenses for one camper! This year we are also offering, sponsor a cabin for $500, which includes advertising for 6 months on the website.
Or they can do a Zebra Partner for $75, or a Zebra Friend of $40. All of these options will be loaded on our Online Store in the coming month, or they can mail a check to Clara Lemarr Foundation, PO BOX 42161, Fredericksburg, VA 22404.
Help us help the kids!!!
We hope to expand camp across the Nation so that all Zebras have the opportunity. Do you want to help start a camp in your state? Please email us and let us know where you are located and we will help get it set up, and hopefully our own Clara Lemarr will be able to travel and be at your local camp!!!